For the frame placement, you will probable stay overnight 3-4 days. At the hospital, they do not have anything but a diaper that can go over the frame (no pants or undies will fit) so if your child is not a bed wetter they are not going to want to wear the diaper except for maybe the 1st night. You just cannot get any ol’ Pull-up. If your child where’s a Pull-Up at night for the occasional accident they are no longer going to be able to do this. It just wont fit, cutting and taping is a crazy idea, it doesn’t work well. I found that you could order child diapers (youth briefs) online from a company called Woodbury Products. They come in bulk so if you don’t need 96 of them then go to the store and buy Depends Fitted Maximum Protection in s-m these are the only ones that will adjust to fit a little one but beware the Depends brief goes all the way up past the belly button so you’ll need to fold em’ over. I found them at Wal-Mart.
A little more advice about the hospital… Keep your child comfortable… They cannot always express the pain they are feeling. The muscle spasms are the hardest to control. You do not know when they are coming. Weston was on Tylenol with Codeine and Valium. At first, they may use Morphine. For the occasional pain this helps, but only lasts for about 45 minutes. Remember I am not a doctor I am a mother. So if you have questions talk to a doctor or nurse. The Tylenol is for pain the Valium is for muscle spasms. Also, I think the valium keeps them from getting a little too emotional. Weston got very angry and then sad. The frame is shocking at first. Again, keep them comfortable… They are just little. Keep yourself strong. They depend on you. If you are upset, they know it… Now I kept Weston home from school the day of the surgery through the following week. The next Monday we were both ready for him to go back to school. I only had to give him valium for the first week back at school. He was able to function on this better than the Tylenol. The teacher did not notice much of a difference. However, your child maybe different.
Oh an afterthought. The hospital has a care coordinator or something of the sort. I believe that can help you organize some of these things. I did not know this assistance was available to us until the surgeries were done. Therefore, I am not familiar with the program or process that they have. However, help is always nice.
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